By Icon Health Publications
This e-book has been created for sufferers who've determined to make schooling and study a vital part of the remedy procedure. even though it additionally supplies details valuable to medical professionals, caregivers and different healthiness execs, it tells sufferers the place and the way to seem for info protecting almost all themes regarding marfan syndrome (also Arachnodactyly; Contractural Arachnodactyly; Dolichostenomelia; Marfanoid Hypermobility Syndrome; Marfan's syndrome), from the necessities to the main complex components of study. The identify of this e-book contains the notice legit. This displays the truth that the sourcebook attracts from public, educational, executive, and peer-reviewed examine. chosen readings from numerous businesses are reproduced to provide you a number of the newest respectable details on hand up to now on marfan syndrome. Given sufferers' expanding sophistication in utilizing the net, plentiful references to trustworthy Internet-based assets are supplied all through this sourcebook. the place attainable, information is equipped on find out how to receive free-of-charge, fundamental learn effects in addition to extra distinctive details through the web. booklet and digital types of this sourcebook are totally interactive with all the websites pointed out (clicking on a link instantly opens your browser to the location indicated). Hard-copy clients of this sourcebook can style mentioned net addresses without delay into their browsers to acquire entry to the corresponding websites. as well as vast references available through the net, chapters contain glossaries of technical or unusual phrases.
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Extra info for The Official Patient's Sourcebook on Marfan Syndrome
Sample text
Always bring any medications you are currently taking with you to the appointment, or you can bring a list of your medications including dosage and frequency information. Talk about any allergies or reactions you have had to your medications. · Tell your doctor about any natural or alternative medicines you are taking. · Bring other medical information, such as x-ray films, test results, and medical records. · Ask questions. If you don't, your doctor will assume that you understood everything that was said.
This is called a “double masked” study. These types of trials help to ensure that the perceptions of the patients or doctors will not affect the study results. Natural History Studies Unlike clinical trials in which patient volunteers may receive new treatments, natural history studies provide important information to researchers on how Marfan syndrome develops over time. A natural history study follows patient volunteers to see how factors such as age, sex, race, or family history might make some people more or less at risk for Marfan syndrome.
You also may need to pay for travel between your home and the clinic. You should find out about costs before committing to participation in the trial. If you have health insurance, find out exactly what it will cover. If you don't have health insurance, or if your insurance company will not cover your costs, talk to the clinic staff about other options for covering the cost of your care. What Should You Ask before Deciding to Join a Clinical Trial? Questions you should ask when thinking about joining a clinical trial include the following: · What is the purpose of the clinical trial?