By Icon Health Publications

This e-book has been created for sufferers who've made up our minds to make schooling and learn a vital part of the therapy procedure. even though it additionally supplies details beneficial to medical professionals, caregivers and different healthiness pros, it tells sufferers the place and the way to appear for info masking nearly all themes relating to tropical spastic paraparesis (also HTLV-1 linked myelopathy), from the necessities to the main complex components of study. The identify of this ebook contains the note authentic. This displays the truth that the sourcebook attracts from public, educational, govt, and peer-reviewed examine. chosen readings from numerous companies are reproduced to provide you a number of the most up-to-date authentic details to be had to this point on tropical spastic paraparesis. Given sufferers' expanding sophistication in utilizing the web, plentiful references to trustworthy Internet-based assets are supplied all through this sourcebook. the place attainable, information is equipped on find out how to receive free-of-charge, fundamental study effects in addition to extra distinctive info through the web. ebook and digital types of this sourcebook are totally interactive with all of the websites pointed out (clicking on a link immediately opens your browser to the positioning indicated). Hard-copy clients of this sourcebook can sort stated internet addresses without delay into their browsers to procure entry to the corresponding websites. as well as broad references available through the net, chapters comprise glossaries of technical or unusual phrases.

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Extra info for The Official Patient's Sourcebook on Tropical Spastic Paraparesis

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Clinical trials are carried out in three phases: · Phase I. Researchers first conduct Phase I trials with small numbers of patients and healthy volunteers. If the new treatment is a medication, researchers also try to determine how much of it can be given safely. · Phase II. Researchers conduct Phase II trials in small numbers of patients to find out the effect of a new treatment on tropical spastic paraparesis. · Phase III. Finally, researchers conduct Phase III trials to find out how new treatments for tropical spastic paraparesis compare with standard treatments already being used.

How long will the treatment last? How often will I have to come back for follow-up exams? · What are the treatment’s possible benefits to my condition? What are the short- and long-term risks? What are the possible side effects? · Will the treatment be uncomfortable? Will it make me feel sick? If so, for how long? · How will my health be monitored? · Where will I need to go for the clinical trial? How will I get there? · How much will it cost to be in the study? What costs are covered by the study?

How will my health be monitored? · Where will I need to go for the clinical trial? How will I get there? · How much will it cost to be in the study? What costs are covered by the study? How much will my health insurance cover? · Will I be able to see my own doctor? Who will be in charge of my care? Clinical Trials 35 · Will taking part in the study affect my daily life? Do I have time to participate? · How do I feel about taking part in a clinical trial? Are there family members or friends who may benefit from my contributions to new medical knowledge?

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