By Julie Stachowiak PhD
Winner of a 2009 Foreword reports publication of the 12 months Award Written for everybody with MS, whatever the style, severity of signs, gender, age, or time due to the fact prognosis, The a number of Sclerosis Manifesto: motion to Take, ideas to dwell by way of includes severe details equipped lower than “action” statements and utilizing examples of ways this data can such a lot successfully be used to assist the readers. writer Julia Stachowiak, who used to be clinically determined with the ailment in 2004, has crafted a street map that not just offers encouragement but in addition bargains schooling and motivation for readers. In 12 chapters, Stachowiak covers each element of an activist MS existence, from huge recommendations like gaining self belief, motivating others, and taking keep watch over to sensible instruments like developing an MS id, exploring complementary and substitute remedies, and studying in regards to the rights and tasks that include the . within the strategy, she bargains readers with MS an opportunity to remodel either the scientific and healthcare industries and themselves.
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Extra resources for The Multiple Sclerosis Manifesto: Action To Take, Principles to Live By
Sample text
I’m not going to argue that any of these things do or do not contribute to MS. Nonetheless, I can state pretty boldly that there is not one single thing that directly causes MS. Rather, there is a combination of things at work, including genetics, geography, and/or exposure to infections. It might go something like this: (1) we have a genetic vulnerability in our DNA, which in turn (2) makes our bodies inefficient at metabolizing vitamin D, in addition to which (3) we may not have gotten enough exposure to the sun (maybe because of geography—far from the equator—or because we just did not go outside much) to 28 T H E M U LT I P L E S C L E R O S I S M A N I F E S T O allow us to make enough vitamin D to compensate for the problem, then (4) we get an infection (maybe mononucleosis) that tweaks our immune system the wrong way, maybe even because of the effects of vitamin D deficiency on certain parts of the immune system.
What would you like to believe instead? Find a way to counterargue. Your follow-ups can change over time, but don’t let one negative belief go by without challenging it. Do Your Best Develop a voice inside your head that is always positive and ready to argue with your negative thoughts. You probably already hear the negative voice talking to you loud and clear; it’s time to find the positive one. Have the courage to let go of your limitations. You may have actually grown fond of some of your negative and limiting beliefs, and may have even built parts of your personality around them, which means this exercise will be particularly difficult.
Many people in these situations are afraid to ask questions, do not fully understand their diagnoses, or are overwhelmed by prescribed treatment regimens or medication side effects, all of which leads to reduced adherence and worsening health. Know Your Stuff Health literacy is the capacity of a person to process the health information necessary to make the decision that is best for them. For those of us with MS to be truly health literate, we will pull information from neurology, psychology, clinical trial research, immunology, and sometimes even fields like urology and acupuncture.