By Bjørn Hofmann, Jan Helge Solbakk, Søren Holm (auth.), Dr. Jan Helge Solbakk, Dr. Søren Holm, Dr. Bjørn Hofmann (eds.)
The Ethics of study Biobanking investigates many of the moral, criminal and social demanding situations raised by way of learn biobanking. within the first a part of the booklet the authors pursue the several regulatory recommendations envisaged inside a normative terrain dictated by means of various conceptions and interpretations of the expert consent doctrine. within the moment half a very new strategy is explored. The authors examine the conceptual capability of alternative analogies outdoors clinical examine used to depict people's swap and alternate of valuables among themselves and a typical establishment. The booklet is geared toward either educational audiences (biobank curators, biobank researchers, ethicists, gene-epidemiologists, well-being legislation specialists, philosophers, social scientists and complex and graduate scholars within the correct disciplines) in addition to future health and examine regulators, ministries, politicians and most people.
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Additional resources for The Ethics of Research Biobanking
Example text
The advantage given by this definition of nonidentifiable is obvious. If high standards of anonymization can be created and strictly enforced in the biobanking community then the need to invoke informed consent for either retrospective or prospective biobanking can be eliminated. If researchers are required to hand all data to trusted third parties that, following international standards, can encrypt, anonymize, and link them, then biobanking can be put on a firm, universal, and practical ethical foundation.
If this case is any evidence then many now deceased persons might object strenuously to the commercialization of their gift. Informed consent is a fiction when it comes to retrospective biobanks. It may be a convenient fiction but it is, nonetheless, a fiction. It would seem more reasonable to resolve disputes about retrospective banks by having a committee, broadly constituted to include many public members, to assess what they believe best serves the public interest. Surprisingly, consent is not all that much better as a principle to protect the autonomy and privacy of those involved in prospective biobanking.
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