By Lucy Whitman, Joanna Trollope

How does it believe whilst an individual you're keen on develops dementia? How do you take care of the surprise, the tension and the grief? are you able to make sure that you and your loved ones will obtain the aid you would like? In "Telling stories approximately Dementia", thirty carers from diverse backgrounds and in several conditions proportion their reports of taking good care of a dad or mum, associate or buddy with dementia. They communicate from the center approximately love and loss: 'I nonetheless locate it not easy to think that Alzheimer's has occurred to us', writes one contributor, 'as if we have been despatched the incorrect script'. The tales instructed the following vividly mirror the tragedy of dementia, the gravity of loss, and cases of unsatisfactory prognosis, therapy and care. yet they include desire and optimism too: transparent symptoms that the standard of people's lives will be stronger through delicate aid prone, via better realizing of the impression of dementia, via recognising the significance of valuing us all as people, and by means of embracing and maintaining the connections among us. This targeted selection of own debts can be an attractive learn for a person laid low with dementia in a private or expert context, together with family of individuals with dementia, social staff, clinical practitioners and carers.

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Extra resources for Telling Tales About Dementia: Experiences of Caring

Example text

Partly I felt guilty at not doing more; daughters – Polish daughters especially – tend to feel guilty most of the time. The carers worked all year round, including Christmas, and in their spare time they often took on extra work cleaning or looking after other people. My parents provided them with bed and board on top of their wages. What they saved, they sent home to the families they’d had to leave behind in order to provide for them by working abroad. This was particularly poignant when one of the carers lost her own mother during her time with us.

His friends remember that he was enormous fun, with a very individual way of expressing his opinions. They mention too his deep-seated sense of loyalty, his respect and love for justice, his lack of pomposity and the way he upheld his principles without wavering. Friends and clients still remember, too, his wise advice – sensible, measured, down-to-earth and tempered by a wry sense of humour. How sad to be writing all this, of necessity, in the past tense. For so much of it is lost to us, now that he is in the advanced stages of dementia.

It broke my heart when not only his short-term memory but even his long-term recollection finally went. I remember a conversation about the war when I realised he couldn’t remember the Soviet army invading Poland in 1939. This was a fact so imprinted on his mind and the minds of his contemporaries. He himself had been rounded up by Soviet soldiers. I couldn’t bear to see it had slipped away along with so much else. 32 ~ T ell i n g T ale s a b o u t D e m e n t i a ~ Maria with her father Leonard All you can do is live in the moment.

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